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Comments
Awww!
That's a sweet first kiss.
Yeah I thought so too.
and kind of nice to see her have it sort of on her own terms.
Thanks for reading and everything Lexa.
I really appreciate it.
*Big Hugs*
Bailey.
Bailey Summers
So Sweet!
I'm having a hard time imagining Kayla as attractive. I'll be the first to admit that my prejudices affect my thinking-and yeah, I know it's wrong, and I AM working on it. Hopefully it's like other things-admitting there is a problem is the first step to eliminating the problem. Okay?
I don't know what her condition really does to her body. I know there is a lot of serious, debilitating pain, but besides walking on her toes, does she look normal? I'm just trying to get an image in my mind.
I love the way that Holly supports Kayla. She's a great Mom for Kayla, and I know that this period of wonderful love and acceptance is eventually going to be threatened in some way. I also believe that Kayla will prove to be the strong one, protecting Holly (probably from their own family!).
This is such a sweet and loving story of overcoming the past and pushing the barriers to find the real person inside. Kayla and Holly have my support!
I'm gonna create black hole hugs that just PULL you in!
Love you both!
Wren
Hi Wren, since you asked
Hi Wren, since you were brave enough to ask the question I will try to answer as best as I can for you and everyone else who didn't ask but probobly wants to know. It's kind of hard to describe what the gait (the way they stand and walk) of a person a spastic CP looks like, but I'll give it a shot.
Basically I'll describe myself starting from the feet up. Kayla is a little bit different from me, but this should give you a basic idea. Many of the tendons in my legs like the Achilles tendon in the heal and hamstrings in the leg never grew to full length. This is very common in CP. So I can not put my feet flat on the floor. That is why many people with CP walk on their toes. Basically my feet are pulled up as if I were in heels when when I'm not. My feet also turn in slightly the way a baby walks. Braces over the years have lessened that to the point most people don't notice that part anymore, but I see it in me every day. My legs also bend at the knees when I walk. In my case it's about an 80 degree bend at my knees. That's because of the hamstring length. Moving up from the legs, I have lower gross muscle control in my trunk muscles (around the hips). This means I can't use the same muscle movements other people do to walk. So I use hip movements to shift each foot forward. Because of the way my feet fall to the ground quite hard with the exaggerated muscle movements, there is a very distinctive "horse clomp" to my walk. You never forget that sound once you know what it is. I can hear someone coming with spastic CP long before I spot them most of the time..
Here is a good video of an adorable little girl with similar CP walking:
http://www.youtube.com/watch?v=QQ0VEAfrhNY&feature=related
Towards the end of the clip there is a good side shot as she walks by, and you can see how her feet land as she steps and how her legs bend. You might also notice that her hip movements get more extreme there at the end. That's a sure sigh she was getting tired. At that age I would have had to be carried back after a stroll like that, but I also flatly refused crutches until I was 17.
Kayla's feet probobly turn in more and her legs probobly bend more then this little girls do. She was never encouraged to play and really use her legs between therapy sessions like I was and I'm sure the angel in the video was.
The random tiredness and spurts of energy depending on the day have already been touched on in the story. The shakiness of her hands have been explained as well. Any other effects that Kayla has to deal with I will leave to Bailey to explain in the story. CP is a major umbrella term that has a lot of different effects it can have on different people. I would guess her handwriting is absolutely awful, and she likely has random muscle spasms called clonus. There are days I can thread a needle no problem, an there are days that the act of grabbing a bottle of lotion off my vanity has me knocking everything within arms reach onto the floor. It's actually the randomness of it that is the most frustrating.
This is so what I wanted out of this story. (Teary smiles.)
I Love that we're getting to talk about this and learning a seeing stuff. God Gwendolyn that video was perfect. Kayla is a bit more worse off than her like you said. She's sort of got the reverse duck feet effect going on and her knees do bend in.
The way she's at in her state and condition is one of the things she's going to vent about in therapy. I'm so glad I'm getting things close with this about some of the other things she has to go through.
Thanks for telling your part of this story Gwendolyn.
I really, really and so glad you're commenting honestly your voice in the comments adds so much to the experience.
*Great Big Hugs*
Bailey.
Bailey Summers
We both love the hugs Wren.
I'll leave the technical elements to Gwendolyn's comment to you. But Kayla is actually pretty thin. I know there's a weight gain tendency in a chair and other things but with the meds and the pain she's lived with you really don't feel like eating a whole lot. That and Nan wasn't a great cook, decent but very bland. She is out of shape compare to some other kids in her position who had better support.
Mikayla is a skinny sixteen year old, sandy blonde straight hair and soft brown eyes. her shoulders are a bit on the strong side but that's pretty normal and no curves whatsoever. Dressed and made up she is pretty. Like Avril Levegne a bit without the media makeover. Not quite as tiny though.
When she smiles though she has a great smile.
I'm glad that you really like this though Wren:)
*Great Big Hugs*
Bailey.
Bailey Summers
Kayla as attractive
My first girlfriend had CP, and she was very attractive, at least I thought so. She had the face of an angel, and when she smiled it lit up the room like no ones I have seen.
Dorothycolleen, member of Bailey's Angels
Lovely Story, Bailey
I really like how you're handling her situation. Wait until she finds out how much of a girl she'll be.
Portia
Portia
Thanks so much Portia:)
I got really lucky to have been able to write for this.
Thank you so much for reading and commenting.
*Big Hugs*
Bailey.
Bailey Summers
This story continues to be
This story continues to be magic Bailey. I love reading about Kayla growing into herself. She is such a strong and sweet girl. She just doesn't quite realize it yet.
Just don't let her hear it phrased like that. At her age, what I thought of as ridiculous little kid praise and the "good try" awards for little things everyone else can do was a real quick way to get me super mad. I just wanted to figure out how to do them and move on.
The comment about being "protected" is so on the mark. I was so lucky to have a mom who treated me the way Holly treats Kayla, assumed I could do it until I couldn't and gave me straight answers about whats going on. I have an aunt who I was pretty much perpetually cheesed off at growing up because of the way she wanted to "help".
One last thing. Holly should start insisting Kayla come in with her when she is given progress reports. Nothing is discussed that Kayla shouldn't already know or at least suspect, and it would go a long way to her feeling like she is growing up and part of the decision making process and not a helpless kid who the adults need to always protect. Even if she doesn't say anything, being trusted enough to listen would go a long way towards her feeling more independent. An if you're thinking it, yes some professionals do HATE this idea for different reasons. :-D
Thanks so much Gwendolyn:)
I'm so glad that I'm getting on the right side of things with this. I know what you mean about Holly should be insisting to have Kayla with her on what's going on but it's not so much Holly being told about Kayla's progress as them checking up on Holly and how she's coping.
Still though that'll be a big trust thing if Kayla gets to hear that stuff too. I'll have to think on that whole thing.
*Great Big Hugs*
Bailey.
Bailey Summers
I can't believe I missed
I can't believe I missed chapter 4! D'oh! All caught up now though. :-)
After the pillow scene last chapter it was great to see Kayla have an 'awwwwwwww' moment. Little by little this girl is starting to live life. :-)
Thank you for another (two) chapter(s).
"Just once I want my life to be like an 80's movie, preferably one with a really awesome musical number for no apparent reason. But no, no, John Hughes did not direct my life."
"Life moves pretty fast. If you don't stop and look around once in a while, you could miss it."
I stole the pillow scene:)
A friend of mine did that with one of her kids. She has dislexia and gets frustrated but hates letting it out because she thinks losing her temper while frustrated makes her look dumb. I think part of any good parents job is to get kids to where they aren't all bottled up or afraid to tell us what's going on. If they can actually trust us as parents then you'd have some pretty amazing kids. It's part of loving them, why is that so hard huh?
Sorry Jemima, got a little ranty there.
*Great big Hugs*
Bailey.
Bailey Summers
I actually know that one
I actually know that one quite well as dyslexia runs heavily in my family. It missed me but got my sister and although she was lucky enough to get diagnosed at school and belatedly helped there were times I could really see that pent up frustration in her, that fear of looking stupid. I'm lucky enough to be very close to her but as teenagers there were times I could see that rage seeking an outlet. It didn't help that I was an honour student and an athlete and I know it bothered her how effortlessly it all seemed to come to me. I wish I'd known about that pillow trick then because we'd have beaten the stuffing out of more than one.
So rant all you want Bailey.
*hugs*
"Just once I want my life to be like an 80's movie, preferably one with a really awesome musical number for no apparent reason. But no, no, John Hughes did not direct my life."
"Life moves pretty fast. If you don't stop and look around once in a while, you could miss it."
okay, you're paying for my tissues
cause that was so sweet it made me cry, but in the good way, you know?
Dorothycolleen, member of Bailey's Angels
Thank you Dorothy:)
I'm really glad that you read this and that it's still moving people.
*Big Hugs*
Bailey.
Bailey Summers
nice one
I loved the Star Trek bit. you just can't beat a good trek bit.
good chapter, thanks
Thanks Lonewolf:)
I thought that was rather geeky-cute and stuff. There are some people with "Tractor beam lips" out there.
*Hugs and Howls.*
Bailey.
Bailey Summers
Thank you Bailey,
ALISON
I am just so glad that Ragtime Rachael inspired you to write this story,you have done a
really great job of it,with incredible warmth and empathy for those who are not as fortunate
as we are.I salute you!
ALISON
I'm glad she did too...
But I haven't seen her here that much lately so i'm hope she's alright but RL troubles are vastly different than any of ours.
Thanks so much Alison:)
*Big Hugs*
Bailey.
Bailey Summers
You did it again, that makes
You did it again, that makes Four or Five of your stories you got me with, I finally had time to finish reading this, Glad she didn't wake up in all that pain this time, I know with whats wrong with her that not everyday is going to be like this one, but I hope she gets a lot more !
*hugs* Thank you Bailey :)
Robinverse
Have a mew of a day!
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Have a mew of a day!
Thank you so much DarkKitty:)
I'm really glad that you enjoyed this and like the stories so much. Time...ahhh, I really do seem to need more time. I've gotta move to the Snakes and Ladders planet Silvania, they have a 36 hour day.
*Love and Hugs*
Bailey.
Bailey Summers
My boy friends
brain is cross wired too but he still doesn't know it. He is a tough one to figure out though. Is he a man or is he a woman I often times wonder!?
Anyway, I really love this story as it deals more with reality than many of the other stories that I have read do.
A tortured soul finally getting a little help, lot of help really but still finally she is being helped along with by a relative who understands. What a rarity!
To kiss a boy for the first time, sigh! Memories lol!
Some of us might not show it but trust me my girly brain is just as messy and crosswired as yours is.â€
Thanks Vivien:)
As always I'm so glad that you liked this story and that people are still reading this story as well:)
As Long as you love your BF then everything's awesome:)
*Big Hugs Chere.*
Bailey.
Bailey Summers